While we had a good time on Monday in the Hilton celebrating 7 years of marriage neither Laura nor I slept good on Monday night. We both woke not rested and wondered if our lack of good sleep was because we were anxiously awaiting a day full of doctor appointments on Tuesday or because we felt guilty for feeding the Paris Hilton fun fund. I'm pretty sure it was more the former but the guilt of seeing Paris Hilton at the latest club with her latest boy-toy didn't sit well either. Oh well, have a drink on us Paris.
Tuesday was a marathon day. We arrived at Children's Hospital of New York-Presbyterian at 9 a.m. We walked out seven hours later after three tests and one visit with our pediatric surgeon, Dr. Stolar.
The bumps on the lungs that we thought we saw in our last sono were no longer there. That is good news. The heart looks great and that is good news considering that some CDH babies also have a problem with their heart. There is still no excess fluid in the chest and that is good. However, that stubborn stomach is still up in the chest area so no new development there.
The doctors who performed the ultrasound and fetal MRI were definitely all about the medicine aspect of doctoring. They hardly looked us in the eyes or even spoke to us. It felt as if we were subjects with whom they were experimenting. After those two tests we had an appointment with the director of pediatric surgery, Dr. Stolar. Of all the doctors who had the right to be arrogant and had the right to talk down to us, it was him. However, he was kind and gracious. More than that, he was confident and assured of his gifts as a surgeon. I was comforted as he didn't come across as arrogant but simply sure that we were in the right place. He seemed hopeful and optomistic about CDH babies in general although he offered no predictions for us specifically. He warned us to beware of the internet and the information that we come across as that info is not always accurate. Our final appointment was the fetal echo. The pediatric cardiologist's final summation was, "the heart looks good and I don't need to see you again until the baby is born." Hallelujah.
You might wonder how all these tests and meetings get scheduled. We are provided a "care coordinator" who makes all our appointments and makes sure we know where we are going and when to be there. Karlla is our care coordinator. She met us upon our arrival at the hospital yesterday and gave us our itenarary and maps of where we were to go. She even gave us ideas about where to eat lunch. She was very, very kind and always had a smile on her face. She knows us by name and seems genuinely concerned for us. I'm glad to know her and glad that she is working with us.
We walked away exhausted. We slept well last night. We both woke feeling rested. Thank you for your prayers and thoughts. They are appreciated.
God, thank you for getting us through our day on Tuesday. Give us the strength to carry on. Amen.
Tuesday was a marathon day. We arrived at Children's Hospital of New York-Presbyterian at 9 a.m. We walked out seven hours later after three tests and one visit with our pediatric surgeon, Dr. Stolar.
The bumps on the lungs that we thought we saw in our last sono were no longer there. That is good news. The heart looks great and that is good news considering that some CDH babies also have a problem with their heart. There is still no excess fluid in the chest and that is good. However, that stubborn stomach is still up in the chest area so no new development there.
The doctors who performed the ultrasound and fetal MRI were definitely all about the medicine aspect of doctoring. They hardly looked us in the eyes or even spoke to us. It felt as if we were subjects with whom they were experimenting. After those two tests we had an appointment with the director of pediatric surgery, Dr. Stolar. Of all the doctors who had the right to be arrogant and had the right to talk down to us, it was him. However, he was kind and gracious. More than that, he was confident and assured of his gifts as a surgeon. I was comforted as he didn't come across as arrogant but simply sure that we were in the right place. He seemed hopeful and optomistic about CDH babies in general although he offered no predictions for us specifically. He warned us to beware of the internet and the information that we come across as that info is not always accurate. Our final appointment was the fetal echo. The pediatric cardiologist's final summation was, "the heart looks good and I don't need to see you again until the baby is born." Hallelujah.
You might wonder how all these tests and meetings get scheduled. We are provided a "care coordinator" who makes all our appointments and makes sure we know where we are going and when to be there. Karlla is our care coordinator. She met us upon our arrival at the hospital yesterday and gave us our itenarary and maps of where we were to go. She even gave us ideas about where to eat lunch. She was very, very kind and always had a smile on her face. She knows us by name and seems genuinely concerned for us. I'm glad to know her and glad that she is working with us.
We walked away exhausted. We slept well last night. We both woke feeling rested. Thank you for your prayers and thoughts. They are appreciated.
God, thank you for getting us through our day on Tuesday. Give us the strength to carry on. Amen.
posted by jch at
1:05 PM
2 Comments:
We continue to pray for strength, healing and peace to be with you. I know this situation is on a lot of people's hearts - and there is definitely strength in community. Thanks for being open to sharing a piece of what you guys are going through - we aren't expected to carry burdens alone.
Happy 7th by the way! (I'm always one step behind my wife.)
We love you guys.
BYoung
We are praying for a miracle for baby Ira and your family! We love you!
Jen Eller
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