Welcome Home Sweet Boy

What a day! I don't have the energy right now to give you the full details but it's been a heck of a day. I couldn't keep quiet about the big day. I told the receptionist at my gym, Michelle, that I was bringing my boy home today. I told the car attendant at the hospital, Umberto, that I was bringing Ira home today. I told the security detail at the hospital, Albert and Maria, that Ira was leaving today. None of them asked but I told them.

As we left the hospital, nurses and docs cheered for us. Church family came to cheer for us. I cried then and have been crying on and off all day.

Ira's doing well. He had a hard time with the transition from the cannula to the CPAP this evening and it wigged us all out a little as he turned blue and cried furiously but we got over that hump and he is sleeping nicely.

Sophia has been incredible through all this. All she wanted to do tonight was have Ira sit in her lap. So we made it happen. She was a happy girl. We are a happy family.

The two nurses we've met thus far are just fine. Our space it tight and already I'm feeling a bit compromised in my freedom but this is the sacrifice we make, right? So we press on.

There are many more hurdles as some of you have mentioned in your comments. Ira is still a sick boy. That's evident when he turns blue and when he throws up. It's evident every time we feed him through the G-tube and not through the mouth. It's evident when we give him his five different meds throughout the day. It's evident when you hear him cough or grunt for air.

But he's come far in this marathon and I expect that he will go farther. It's not over yet. But he is still running. And if he is, so are we.