It is Thursday night and Laura and I are home in Brooklyn. We left Ira looking like he had just stepped out of the ring of a heavyweight fight. The entire left side of his body is swollen from the ECMO machine. The ECMO specialist assures us that he will pee all of this fluid out. In the meantime Ira looks whipped. I guess that is what three surgeries in seven days will do to you. (The insertion of and removal of the ECMO machine are considered surgeries being that they have to open up us his neck in both instances.)
So Ira has cleared several hurdles. He was born. They finally stabilized him with the help of the ECMO machine . They were able to get him to a certain "flow" on ECMO to do the CDH repair. He made it through the 24 hours after the surgery. They were successful in weaning him from ECMO. He was taken off the ECMO machine.
The next hurdles are these: in the next 3-7 days they want to see him come off the ventilator but it could be longer. They have to keep an eye on his pulmonary hypertension as this is life threatening. (Most CDH babies deal with this issue.) And eventually we will have to teach Ira how to eat. He's been sustained through IVs in his arm and belly.
We are incredibly exhausted but so very thankful to have made it this far. Ira is one week old today. Happy birthday Ira.
So Ira has cleared several hurdles. He was born. They finally stabilized him with the help of the ECMO machine . They were able to get him to a certain "flow" on ECMO to do the CDH repair. He made it through the 24 hours after the surgery. They were successful in weaning him from ECMO. He was taken off the ECMO machine.
The next hurdles are these: in the next 3-7 days they want to see him come off the ventilator but it could be longer. They have to keep an eye on his pulmonary hypertension as this is life threatening. (Most CDH babies deal with this issue.) And eventually we will have to teach Ira how to eat. He's been sustained through IVs in his arm and belly.
We are incredibly exhausted but so very thankful to have made it this far. Ira is one week old today. Happy birthday Ira.
14 Comments:
bless your hearts... sleep well tonight as God watches over Ira...
much love,
your cousin Jennifer
Joe and Laura, I have just worked a 12 hour shift in labor and delivery and am very tired but reading your post has made my day. Way to go Ira! Way to go God! Thank you for sharing your good news.
grace, Julie
Ira sounds like a tough little guy, I'm sure he's going to fight his way out of this. Happy one week Birthday Ira.
Tearfully thinking of ya'll. We continue to pray. God IS good! All the time! I sure feel it right now!! Thank you for your continued updates, I know it is the last thing you should have to do but we appreciate it. I can't tell you how many times a day I check it. You are on our hearts every moment! Love ya'll!
Cara and Michael
Thank you God for the way you continue to take care of sweet baby Ira. Please give Joe, Laura, and Sophia a peaceful night of sleep. May you restore their bodies and souls. Amen.
Thanks for all of the updates, I see that God is truly watching over Ira and your family. Take care and get some rest.
Jeremy
Happy Birthday, precious miracle Ira! I know these seven days have felt like seven years. Congratulations to you and your awesome parents and sister, and praise to our God who has shown us His Mercy and Compassion in these seven days. We are still praying!
Blessing of Faith, Hope, & Love,
David , Karise, Keely & Kinlie
Pasadena,CA
What a fantastic idea Chris had to offer a ministry for those with babies in the NICU! What a comfort that would be - to tell "Ira's Story" to them and offer them great hope through the love of God. (I can already see the makings of a movie - with Ira being the star & doing the ministry!) I'm so thrilled to hear how great precious Ira is doing. Now maybe the knot in your stomachs, and lump in your throats will not seem quite as large. Continuing to pray for Ira and all of you. Keep the faith! Love "you all"!
Weedon
We are so happy for your family. We are joyful and thankful that God has given you the desires of your heart.
I will say a prayer for Ira and another for the rest of his family and friends. My little girl (who is now 5) was two months premature and spent 2 months in the NICU. I know how hard it feels to be in the NICU and how hard it is to come to the NICU (for fearing the worst). With Emily we had lots of ups and downs. I pray that you have more ups than downs. Have faith, God bless!
"To Him who is able to do immeasurably more than all we ask or imagine, to Him be the glory forever and ever, Amen. Amen!"
Still praying, still believing...and rejoicing with you!
Love from Fort Worth,
Stacy Kocur
Im so happy 2 hear that Ira is off the ECMO machine. I pray he is going to keep it up.
That little Ira is a trooper! Still praying for you all as you continue on this journey, but SO GRATEFUL for all the good news. Thanks be to God.
I'm am thrilled to hear the news about Ira. I've been anxiously checking the website several times a day for updates and my whole family is praying. Praise God!!
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