All About Ira
Ira seems to be over his rotavirus. The only thing keeping us in the hospital at this point is getting everything squared with home health care. Our health insurance changed dramaticaly this new year so we are dependent on Medicaid to help us once we get home.
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When Ira was home with us he saw a pulmonologist, pulmonary hypertension doc, GI doc and doctor of surgery. Added to that list of docs that we'll see regularly once we leave here is a neurologist. Ira had many traumatic (literally) moments this go-round and we're not certain what affect those had on Ira neurologically.
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Caring for Ira is a much bigger deal now that he has a trach. Since his bout with rotavirus, Ira's needed suctioning at least once every hour. It's not uncommon at all for Ira to get "plugged". Meaning, his secretions harden or are so thick that they plug Ira's trach and he can't breath. It happens without much warning. One minute he's fine, the next minute he's turning blue and his saturation level is down to 50.
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The word is out in the PICU that Ira is going home and so nurses, doctors and respiratory therapists are coming by to bid farewell. It's fun to see them all dote on Ira. Just as we grew to love the NICU staff, we've grown to love the PICU staff. Their care of Ira goes beyond what's required and for that, I am truly grateful.
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When Ira was home with us he saw a pulmonologist, pulmonary hypertension doc, GI doc and doctor of surgery. Added to that list of docs that we'll see regularly once we leave here is a neurologist. Ira had many traumatic (literally) moments this go-round and we're not certain what affect those had on Ira neurologically.
-----------------------
Caring for Ira is a much bigger deal now that he has a trach. Since his bout with rotavirus, Ira's needed suctioning at least once every hour. It's not uncommon at all for Ira to get "plugged". Meaning, his secretions harden or are so thick that they plug Ira's trach and he can't breath. It happens without much warning. One minute he's fine, the next minute he's turning blue and his saturation level is down to 50.
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The word is out in the PICU that Ira is going home and so nurses, doctors and respiratory therapists are coming by to bid farewell. It's fun to see them all dote on Ira. Just as we grew to love the NICU staff, we've grown to love the PICU staff. Their care of Ira goes beyond what's required and for that, I am truly grateful.
posted by jch at
10:17 PM
3 Comments:
Good to hear. We will be praying for you as you continue to care for your son and family. That God provides strength and stamina, as well as time of peace and for rest.
Godspeed, brother
steve
Glad to hear that he is going home. God bless and keep you safe. Take care. Continually praying.
i pray that the transition back home is a smooth as possible. you'll definitely be in my prayers.
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