Just got home from the hospital. Ira is doing good. He had a good night and is having a good day thus far. Yesterday's ecco test showed that Ira's heart function was good but that the pressure was still a bit high. So today they are going to try a new course of action.
They are going to put Ira on an oral medication called Sildenafil. It's also called Viagra. Heard of that before? Yep, that's right, my boy is going on Viagra. Crazy, huh? Click here to read about how Viagra helps patients with pulmonary hypertension. As Ira loads up on Viagra they will start weaning him off the Flolan.
He's getting fed 20 cc of Laura's milk and he is handling it just fine. He is completely off the TPN and was weighed in at 7 pounds and 11 ounces on Tuesday.
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Ira got his sixth different roommate today. I overheard the doctors and nurses saying that she is a CDH baby. Everyone was busy getting set up and then receiving the baby. I hope to meet the parent(s) soon.
They are going to put Ira on an oral medication called Sildenafil. It's also called Viagra. Heard of that before? Yep, that's right, my boy is going on Viagra. Crazy, huh? Click here to read about how Viagra helps patients with pulmonary hypertension. As Ira loads up on Viagra they will start weaning him off the Flolan.
He's getting fed 20 cc of Laura's milk and he is handling it just fine. He is completely off the TPN and was weighed in at 7 pounds and 11 ounces on Tuesday.
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Ira got his sixth different roommate today. I overheard the doctors and nurses saying that she is a CDH baby. Everyone was busy getting set up and then receiving the baby. I hope to meet the parent(s) soon.
posted by jch at
3:58 PM
2 Comments:
Hey Joe and Laura,
First of all, we are so beyond words to the Father for the things He has done for Ira, for you, for all of us. I think it is safe to say that we have each been rescued and restored in our lives, some more often than others. We have all experienced tragedy, suffering, loss, loneliness, desperate times, and on and on. Thank God we don't have to walk through the valley alone. Unfortunately, we often choose to walk alone. How many times have we all been asked "How are you" and our patent answer is what some like to call the "Christian F-word", I'm FINE... We are so good about keeping hidden that which we should cry out about.
You and Laura have allowed us into a very intimate part of your lives, your relationship with each other and your relationship with our Heavenly Father. What an honor it is for you to trust us all with your hearts. We take great responsiblity to make this a place where you can say and feel anything.
Your post yesterday was genuine and spoke from a part of your heart that I assume isn't unveiled very often. Having been where you are and even more, having lost our newborn son, Luke, we so deperately want this to be over for you. To see Ira in your arms gives us great hope and great healing. Please continue to share your story with all of us. We are thankful for the opportunity to walk through the valley with you and Laura. We are thankful for babies like Ira, and Noah Whaley, and our Luke, who teach us more about God's love, grace, mercy, and compassion than we could ever know otherwise. God bless you today and give you peace and may the work of the Lord continued to be displayed in your life.
You Go, Ira! Ira and Carlton have something in common. Momo's husband is on Viagra too! He is 82 and she is 89! You didn't want to hear that, did you, Joe?! Love you guys! Kaki
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