Step One
Step One
Step One of thinking about Ira coming home is trying to make room for him in our place. And making room meant that Sophia would need to move from the crib to a "big girl bed". She's an amazing sleeper and didn't mind the transition. She loves her bed and after a couple of morning explanations, doesn't get up until we come and get her.
We're still a long way away from Ira coming home. He needs to come off the Flolan (preferably) and his heart needs to respond to the Viagra. It's happening slowly.
He then needs to come off the CPAP. It looks as if this is going to take a while. When they re-tape the CPAP and suction him they have to take the CPAP off. Ira doesn't respond well with the CPAP off. So we have a while.
He then has to learn how to eat. He's currently being fed Laura's milk 24 hours a day through a tube in his nose. That will eventually need to be compounded into regular feedings and then he'll eventually need to learn to eat through his mouth. Many CDH babies have reflux issues so for some this is a long process too.
So while we are thinking about and getting ready for Ira's trip home, we have a good while before that will happen.
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Baby Alex, the CDH baby we told you about, came through her surgery beautifully. She's already been extubated and we figure she'll go home very soon. Alex's family is incredibly sweet and it's been good to get to know them. We're happy for them.
posted by jch at
8:53 AM
5 Comments:
I am so glad that Ira is doing well. I hate the fact that I know alot of the terms you talk about like CPAP. I only wish that I would read your blog and say, CPAP, what the heck is that.
It is a wonderful thing that you can begin thinking of Ira coming home, and I pray that day comes sooner than you think. Sophia looks so cute in her big girl bed. I laughed b/c it could have been a picture of Alyssa in hers. No covers, lots of stuffed animals - only Alyssa sleeps upside down. I know that Alyssa brought us joy in our days with Noah, and still does. I am glad that Sophia is there for you both, too.
Thank you for your notes to us, it gave me a new perspective on things. Questioning God is not wrong and can make me rely on him more and want to know him better. Take care of yourselves.
Noah's Mommy
There may be a lot of "what ifs" and possible obstacles to Ira coming home, but it shows your faith and trust that you are making plans for him.
May God keep that beautiful baby boy and bring him home to you quickly!
It brings us so much joy to read about making plans for Ira to come home, because that is what we've been praying for before he was even born! We share in your happiness and continue to pray for full and quick healing of Ira. Sophia's big girl bed is cute and what a big girl she is getting to be! Joe, she looks so much like you. We love all four of you and are with you in Spirit.
Summer, Jason and Elijah
Sophia-
You are so cute for good. We love you so much. You're lucky to have a big girl bed now. And, I love you. YOu're so cute and you're on a big girl bed. I love you so much because you're on a big girl bed. You're so cute.
For you-you love me so much and I love you because you're the cutest.
Love, Hallie (6) and Jadyn (3.5) Stack
(typed by their Daddy, Todd)
I have now joined the thousands of other men in the United States in praying desperately for Viagra to work. Heh. :)
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