Ira is four months old today. His friend, Lily, will be five months old tomorrow. There are two other babies who are six months old. The nurses call these babies the senior citizens of the NICU and complain about how heavy they all are.
Ira's had an interesting weekend. He started sleeping on Friday and hasn't had much awake time since. When he woke on Saturday he was not too happy. We had a full week of pure joy with him so we are unsure of how to interpret these latest signs. The last time he slept this much they got neurology involved hoping to find out if anything was going on internally with the brain. We are just kinda waiting it out hoping that he'll snap out of it.
Monday is a big day because they will do another ECCO. We are hoping to find the Viagra to be sufficient for controlling Ira's pulmonary hypertension which would mean we are no longer in need of the Flolan and the Broviac Line. I never thought I would want my son to do well on Viagra. It gives a whole new meaning to the phrase uttered by the doctor, "I hope Viagra works for him."
Ira's had an interesting weekend. He started sleeping on Friday and hasn't had much awake time since. When he woke on Saturday he was not too happy. We had a full week of pure joy with him so we are unsure of how to interpret these latest signs. The last time he slept this much they got neurology involved hoping to find out if anything was going on internally with the brain. We are just kinda waiting it out hoping that he'll snap out of it.
Monday is a big day because they will do another ECCO. We are hoping to find the Viagra to be sufficient for controlling Ira's pulmonary hypertension which would mean we are no longer in need of the Flolan and the Broviac Line. I never thought I would want my son to do well on Viagra. It gives a whole new meaning to the phrase uttered by the doctor, "I hope Viagra works for him."
posted by jch at
9:02 AM
6 Comments:
Joe & Laura,
While Ira's sleepiness could have major health ramifications, it could just be something normal like a growth spurt. Don't get worried yet.
Jena Coffey in St. Louis
"This is the day that the Lord has made. We will rejoice and be glad in it." Joe, Laura, Sophia, Ira, and KK: Have a blessed day.
Love so much,
Mom/Gram/Glo
Praying for great news from the doctors.
Richie
Thanks for the update. Both my boys hit growth spurts at exactly four months. I pray that is what is happening for Ira right now.
lisa c
Give Ira a happy birthday hug from us.
Joe,
I'm agreeing with Lisa C. on this one... let's hope he "dumb-founded" the docs with a simple growth spurt. I think we tend to forget that in that sense Ira is much like other newborns... because he is getting bigger (and heavier, according to the nurse!). I guess the nurses aren't use to older kiddos as much as those little preemies that tend to hang around until the max out at about 8 lbs and go home.
As for college football, WAY better than pro... and once an Ag, always an Ag... even if only for a day. Gig 'Em Aggies... beat the hell outta' Clemson.
Marcie M.
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