my best friends
Update on Ira: He's officially off the Nitric Oxide as of this morning. It turned out that the pulmonary hypertension team moves glacially slow. Even the other docs were a bit perplexed at how slow they moved on this. He's off the NO which means Ira's pulmonary hypertension is being treated with only the Viagra. We're hoping he does well on this so that we can take out the Broviac line. He's developed an allergy to the leads that monitor his heart rate and breathing. So he's broken out all over his chest.
They've compressed his feedings again and the green light has been given to start working with the feeding specialist again. We hope Ira can learn how to eat orally but we understand it will be a long process. He is working with his OT/PT again. (All this was put on hold after his surgery.)
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In other news: my sister, Jackie, from College Station, Texas is here and got oriented into our lifestyle quickly. She came straight to the hospital upon arrival and I gave her a crash course in Ira care.
Tuesday, our friends Yael and Bryan invited us to go to the Bronx Zoo and so we loaded up the car and took off while Jackie hung out with Ira. We had a blast. Sophia loved every minute of it.
The title of this post, my best friends, refers to Sophia's feelings about Yael and Bryan. You can tell from the picture below that she absolutly adores them. And who wouldn't? Yael and Bryan have gone out of their way to take care of us during this struggle with Ira.
They've compressed his feedings again and the green light has been given to start working with the feeding specialist again. We hope Ira can learn how to eat orally but we understand it will be a long process. He is working with his OT/PT again. (All this was put on hold after his surgery.)
-------------------------
In other news: my sister, Jackie, from College Station, Texas is here and got oriented into our lifestyle quickly. She came straight to the hospital upon arrival and I gave her a crash course in Ira care.
Tuesday, our friends Yael and Bryan invited us to go to the Bronx Zoo and so we loaded up the car and took off while Jackie hung out with Ira. We had a blast. Sophia loved every minute of it.
The title of this post, my best friends, refers to Sophia's feelings about Yael and Bryan. You can tell from the picture below that she absolutly adores them. And who wouldn't? Yael and Bryan have gone out of their way to take care of us during this struggle with Ira.
posted by jch at
3:18 PM
3 Comments:
That is great news about Ira....still praying for better news to come!
Joe and Laura, Hannah loved looking at the pictures of her friend, Sophia, and Sophia's baby brother and Mom and Dad. I think she has all of your names down now!
Thanks for the update. We pray that Ira not only continues to be okay off the Nitric Oxide, but starts to thrive off of it.
Much love,
Kari Smith
Go Yael and Bryan!!! Thank you for taking care of our friends!
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