Traching and Scrapping
There's not much to report. Ira's doing pretty good. He's throwing up but he isn't de-satting when doing it and that's good. Reflux is a natural part of his life because of the CDH so we're all wondering if that is what it is...or if he's sick. Have I mentioned that Ira now has a urinary tract infection? Kid can't catch a break. Overall, we're pleased with the progress we're seeing.
We had a family meeting yesterday with a PICU doc and one of Ira's surgeons. We asked all kinds of questions and got their opinions on all sorts of matters. We've been hearing the word "tracheostomy" in the last couple of weeks and had questions about that. Both the PICU doc and the surgeon felt that Ira was making progress and that we should hold off on a trach but both also said it was in the back of their minds.
The PICU doc used the phrase "weeks or months" when talking of Ira's care here in the hospital. After the meeting I turned to Laura and said, "I want Ira home for his first birthday." But alas, I haven't gotten a lot of what I've wanted over the past year and so this too I will deal with when the time comes.
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A reminder that our friend Stacy is making a scrapbook for Ira. She writes:
I'm compiling photos, prayers and notes from those of you praying for Ira. The photos will feature The Wristband, with all the people who've worn it and all the travels it's been on. Send me photos of you wearing the wristband. It's okay if you haven't taken Ira anywhere as exciting as a World Series game. Take a photo of him in your backyard, or at your church, or with your dog. Get creative and have fun taking your pictures. Then send them to me, along with the following information:
1. Your full name or the name of your group
2. Your relationship to the Hays family
3. Where the photo was taken
4. A written prayer or note, if you'd like to have it included with your photo.
5. Put all this into an e-mail with IRA as the subject and send to: cowtownstacy@charter.net
You can send printed photos or digital images, and I'll compile them for Joe, Laura, Sophia and Ira. If you don't have a wristband and would like to participate, click here. We will make the scrapbook available online, so that you can see its progress. If you're uncomfortable with your name and location being posted on the internet, make a note of that in your email and I'll make sure to blur that part out. Thank you for your participation in this project. I am blessed beyond words to be working on it.
Stacy Kocur, Ft. Worth, Texas
We had a family meeting yesterday with a PICU doc and one of Ira's surgeons. We asked all kinds of questions and got their opinions on all sorts of matters. We've been hearing the word "tracheostomy" in the last couple of weeks and had questions about that. Both the PICU doc and the surgeon felt that Ira was making progress and that we should hold off on a trach but both also said it was in the back of their minds.
The PICU doc used the phrase "weeks or months" when talking of Ira's care here in the hospital. After the meeting I turned to Laura and said, "I want Ira home for his first birthday." But alas, I haven't gotten a lot of what I've wanted over the past year and so this too I will deal with when the time comes.
------------------------------------------
A reminder that our friend Stacy is making a scrapbook for Ira. She writes:
I'm compiling photos, prayers and notes from those of you praying for Ira. The photos will feature The Wristband, with all the people who've worn it and all the travels it's been on. Send me photos of you wearing the wristband. It's okay if you haven't taken Ira anywhere as exciting as a World Series game. Take a photo of him in your backyard, or at your church, or with your dog. Get creative and have fun taking your pictures. Then send them to me, along with the following information:
1. Your full name or the name of your group
2. Your relationship to the Hays family
3. Where the photo was taken
4. A written prayer or note, if you'd like to have it included with your photo.
5. Put all this into an e-mail with IRA as the subject and send to: cowtownstacy@charter.net
You can send printed photos or digital images, and I'll compile them for Joe, Laura, Sophia and Ira. If you don't have a wristband and would like to participate, click here. We will make the scrapbook available online, so that you can see its progress. If you're uncomfortable with your name and location being posted on the internet, make a note of that in your email and I'll make sure to blur that part out. Thank you for your participation in this project. I am blessed beyond words to be working on it.
Stacy Kocur, Ft. Worth, Texas
posted by jch at
6:59 AM
1 Comments:
We will pray for that, too, Joe, that Ira be well and home with his family on his first birthday.
I continue praying for an absolute, unmistakable miracle of healing for your baby boy.
I believe.
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